Clinical significance of the bicuspid aortic valve | Heart Is that so, or can it be measured by the echocardiogram as well? Barb. 1) Son has to stop football training as well as any physical activity, even at school (P.E. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). My question here is what is the damage I can cause to my heart, mechanical valve, if I keep my heart rate at hi intensity levels? I am 18 years old . At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. We expect the current generation tissue valve to last at least 12-15 years before problems. Because BAV may be an inherited condition, Athletes with BAV, no significant valve stenosis or regurgitation, and an aortic diameterless than 4.0 cm can participate fully in their sport(s), Athletes with BAV and enlargement of the aorta to between 4.0 and 4.5 cm can participate safely in only low and moderate intensity sports (this would. Consult your doctor to see if there are any restrictions that would be specific to your case. If echo shows a normal size, thats probably okay. 2k erg test. Just still unsure however if my bioprosthetic valve affects my cross country running times. I did run 1-2 times/week for a 1.5 months now, the situation is getting a little better but still I feel like a 80 years old. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. I like to thank you in advance for reviewing my question and also, thank you for such a great blog. I would defer to Dr. Dietz since youve already contacted him. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. It will probably take a visit with a surgeon (who has all of the pertinent details) to outline the possibilities for you. Enjoy! Alternatively, bicuspid aortic valve symptoms can appear during the first twenty years of life. I had AVR 3 years and 4 months ago. That means it is a congenital heart defect. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. Im not surprised that youve received a conservative recommendation about exercise. That is someones life.. I was training for 11th marathon at the time (over the past 13 years). Im followed by a cardiologist who only says not too much weight lifting.. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. Starnes implanted a healthy human tissue valve and said at the time, This will not limit Arnold Schwarzenegger in any way when he recovers.. I am an amateur runner, I do not participate in competitions. Ordinarily, race walking is considered to be in the same category of activity as long-distance running. I would like to know more about your recovery timeline since you are so much further out from surgery than I amfor instance; how long before you could do long rides again; when could you do tempo efforts; start high heart rate intervals; and finally race again? Bicuspid aortic valve is a heart problem present at birth. Can you advise and or recommend a specialist? Have you considered meeting with a heart surgeon to talk about the situation? Aortic valve repair and aortic valve replacement are done to treat aortic valve disease.
Questions about Bicuspid Aortic Valve!! : r/AskDocs my age is 20 right now In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. He was forced to stop playing football at 11. 7373 Perkins Rd
1. Garth was already familiar with heart diease before her diagnosis because it runs in her family. 100 Black-Owned . I know I will need it replaced. Bicuspid aortic valve (BAV) is the most common form of congenital aortic valve disease, in which the valve has only two leaflets instead of the usual three; it affects up to 2% of the population. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Thank you for answering these questions. It was a shock to the system to Hear that we need to consider a repair considering we didntt think this was happened until hey was an adult.
Bicuspid aortic valve: Basics and beyond | Cleveland Clinic Journal of Thank you very much for writing such a thorough and well informed article. So you know, this is not uncommon for heart valve surgery patients. The use of a less invasive transcatheter therapy in this . Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. Can you clarify what may not be true please? Kinda like a marathon but it will take me at least 9 hours. Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. However, my surgeon told me that he could fit a tissue valve and so would not need to be on warfarin.
Bicuspid Aortic Valve Stenosis: Causes, Symptoms & Treatment - Healthgrades 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). I have found out I have a BAV last year. Replacement is much, much more common.
Living fearlessly with bicuspid aortic valve disease In addition to running, I also perform moderate to high intensity resistance (weight) training 5-6 times per week. Hey is almost looking forward to getting it fixed. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. There can be issues with aches and pains even months after operation that still relate to healing. This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. I have recently found out that I have aortic regurgitation will soon be needing surgery. It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. I was to the understanding that the aneurysms caused in bav patients was due to the problematic bav valve causing uneven blood flow to cause uneven pressure on the aorta.
These Famous People Survived Congenital Heart IssuesYou Can, Too I seen my cardiologist yesterday and this is the first year in 4 years that the aneurysm hasnt grown a mm. Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. What are my chances of being able to go back to marathon running after surgery? since the last worsening ten years ago, the situation still stable and each year I went to the doctor to have the tests, they still tell me nothing has been changed since. Is operation needed? Best for athletes like you to have a discussion with their doctor(s) and settle on a defined, mutually acceptable course of action about which sports activities are safe. Seems unlikely to me that there would be lingering effects that would make an EKG or chest x-ray abnormal. With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. At 4.0 cm, its important to be thoughtful about activities. I am riding my 3 rd anual Belgian Waffle Ride today. Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfanss syndrome. But thats just anecdote. So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. Details of my condition: I was just curious if there any way to know if my valve is affecting my times at all? I had a Medtronic Freestyle valve fitted in May 2002, did exactly as directed regarding exercise etc. My son is desperate to be able to play sports without any restrictions. There are certainly athletes whove returned to their sports after valve (and aorta) repair/replacement. I had multiple re-hospitalizations but seemed to recover. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. In this case, would it be an overwhelming pain? Sory but I dont speak very vell english. Celebrity. I have been advised not to run any more marathons or half-marathons, but that I can still compete at up to 10km races. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Negative Stress Echocardiography Im not sure how you should best sort out the differing recommendations from your doctors. To make matters worse, I had a bout of AFIB, about 6 months ago. Me, i`m nearly 43, male and have BAV. Currently, it is estimated that about 5% of those with bicuspid aortic valve disease will experience aortic dissection. While she ended up being okay, she advised other women to be more cautious.
Aortic Valve Regurgitation | 8 Causes, Does It Worsen, & Prognosis All they said is dont really do weight where you can feel the strain in your neck ?!? But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both.
Bicuspid Aortic Valve Symptoms | Northwestern Medicine No stenosis, no calcification. Susp. 2012; 109:1632-1636. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. Im wondering if you can advise me. Keyhole just refers to the type of incision used for conventional valve replacement like you had. While I do not work out regularly, my job as a construction worker is somewhat strenuous. Enlarged ascending aorta 42-43 mm I am a 23 year old male, have BAV with mild AR. Bicuspid aortic valve is associated with abnormalities in the coronary artery anatomy in about 2% of patients, including anomalous origins of the coronary arteries and upwardly displaced coronary ostia. Thanks for the infoI really appreciate what you,have to say. However, is there any advantage to having them screen in their first decade of life, if they are not showing any symptoms?
My question is if my weight&lack of training or my BAV is the cause of difficulty in running. Thats probably what the doctors are watching for. Glad to hear that youre recovering, Zdenko. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. Thank you for the blog that addresses the athletes point of view, and feelings. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? Assuming that 2% of the US population has bicuspid aortic valve disease, that is 6,278,281 people. I am 38 and very active (running, cycling, strength training etc). I was diagnosed with BAV about four years ago now by fluke whilst looking into my high blood pressure (I was only 24 at the time so I underwent a lot of testing due to my age and HBP the conclusion was it is hereditary, with many members of my family with HBP). Great to hear that youre doing cross country running. Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. In late March, Schwarzenegger was heavily involved in a chess tournament with his donkey Lulu. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. How severe are the problems? A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. My son is devastated, depressed, and wanted to play ball in college. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. I dont know what to do .. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. There is very little scientific evidence to guide us here. Dr. Larry, thank you very much for your blog! My Dr is almost certain that these symptoms are caused by issues that are not cardiac related, and that with at the stage my BAVD is at, it would not produce symptoms. An article at Endurance Corner about Normann Stadler, A blog post about elite triathletes and heart problems, Aortic stenosis and bicuspid aortic valve (BAV), http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png, https://academic.oup.com/ejcts/article/50/3/400/2197426, If there is enlargement of the beginning portion of the aorta to greater than 4.0 cm, the individual should have a. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient.
Bicuspid Aortic Valve and Bicuspid Aortopathy Nomenclature and This is true at rest and may be even more so during exercise. I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. I probably get more inquiries from athletes with bicuspid aortic valve (BAV) than any other single heart problem. The rest of the aorta is normal (visualized to just above the bifurcation in the abdomen). After finding out about her heart disease, Braxton stopped eating unhealthy foods at night. host, 76, suffered a mild heart attack in 2012. Sounds like youre on the right track by getting things evaluated. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. For those with moderate aortic stenosis, the guidelines suggest restricting activities. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population .
Bicuspid Aortic Valve | Circulation The Cardiologist now suggesting taking beta blockers as a way to slow things down and has advised that anywhere from 4.5 to 5.0 is where he would consider intervening. Very helpful. Aortic stenosis, the narrowing of the aortic valve. This is an area where second opinions may be helpful in sorting out whats safe. Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. The ST junction and ascending aorta are mildly dilated max 35mm. Their experiences have been variable, and perhaps for a variety of reasons. The plasma volume and the heart rate increase, while the systemic vascular resistance decreases throughout the first trimester and plateau about halfway through pregnancy [10]. Ive starting going to the gym again and doing cardio with weights to tone up.
Bicuspid Aortic Valve (BAV) - Frankel Cardiovascular Center She advised us we should start to consider surgery but would follow up with us again in 3 months. Also, again, no stenosis or regurgitation, 35 mm ascending aorta. My resting pulse is 55 and BP 115/82. I am now 60. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). Im aware that those days are past, but to abandon every activity seems like a prison sentence What is safe side threshold? In addition to being patients, there are many celebrities who, like you, parent a child with CHD as well. A cadaver if valve is then used to replace his pulmonary valve. Males are affected 3:1 compared to females. In the process of how I had the slow waltz with MG UNTIL DIAGnosed, will be ready in 3 weeks. I was also advised that it is really the static weight-lifting that could pose a problem. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. Your email address will not be published. Heart failure, where the heart weakens from working too hard to pump blood. Star Jones. Others won't have symptoms until adulthood, if ever. In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Have you heard about the PEARS procedure? They are able to see my son this Friday, which i am much more comfortable with! I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. Bicuspid aortic valves can accumulate calcium deposits more easily than tricuspid aortic valves. His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. During pregnancy. I dont believe this has been well studied. We all appreciate it. A few hours after helping the woman, she began to experience chest aches, soreness in both arms, nausea and clammy skin. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness.
Celebrities with Heart Valve Disease | Wonder I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. In April of this year (2016), I discovered I had a BAV in the worst manner possible. The other theory is that there is a structural problem that leaves the aortic wall weak. I know that there can be complication with Dacron graft or even aorta aneurysm building up but Ill stay on positive side since I have no tissue disorder and its highly unlikely that with properly working aortic valve I would develop another one in that short period of time. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. Your responses mean a lot to myself and no doubt others on this forum. For me, its about gender equality. "Until then, stay close.. Anyway, talk to a surgeon who understands quality of life means. Last week, the CBS This Morning anchor announced via his co-anchors Gayle King and Norah ODonnell that he would be taking a break from the show to undergo heart surgery. It was her death that prompted me to get checked out. Im a 42 year old male and have been a highly competitive distance runner since high school. For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. Does the BAV with aortic dilatation and small leakage prevent the blood to flow less efficiently? They seem very busy and its taken almost a year to get to this stage. This site complies with the HONcode standard for trustworthy health information. Considering the results of my stress test and TOE, do you think it could be my heart and should I seek 2nd opinion. Im highly considering this option, after 4 months of research and appointments with doctors. Historically, a heart murmur was the most common reason affected individuals were identified. My son is 15 years old, he was born with BAV /aortic stenosis. A bicuspid aortic valve (BAV) is the most common congenital heart defect, occurring in approximately 1%-2% of the general population. Dietz?) Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. I had a David Tirone Operation a couple of weeks ago to repair a BAV with aortic dilatation (49mm), and a small leakage.
Bicuspid aortic valve - Overview - Mayo Clinic I see my cardiologist the end of May. Last few weeks Im getting chest pain on left side (very rarely on right side) while running and doing push ups. My primary question relates to sports. Aortic replacement. Whether 130 beats per minute is a good cut-off truly isnt known. My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. So unfortunately it sounds like i am part of that grey area. Athletes will ask when they can return to their sports. Questions about Bicuspid Aortic Valve!! Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. I ran a 1/2 marathon 4 months after my surgery and have been since training for the Philly FULL marathon, which is tomorrow. that suffer from heart valve disease along with a link to the reference story about heart valve disease and their Twitter handle to tweet on and promote the Valve Disease Day. This is amplified when I sit with my feet up (male cross-legged) because of the tingling/numbness in feet. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. This can be very frustrating to athletes who are used to being more active. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. Surgery. He is now 15. However, there are few reports about the safety and efficacy of TAVI in type 0 BAV. My son is a very active and healthy 14 year old. First, youre not alone! If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. I asked her about surgery. Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. Im due to have an exercise tolerance test soon, but from my dealings so far Ive lost faith in the level of competence of my current cardiologist. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. Please help me . Since he had to stop playing.. depression has set in. What Is Bicuspid Aortic Valve Disease? However, my problem is that if I can train at this pace then I can still run but I certainly cant compete! Its always good that investigators are looking for new solutions to old problems. Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. Sounds like youre on the right track with your upcoming visit with a specialist. Mild/moderate regurgitation. As I train triathlon I check my heart every year and there is small back flow (the same last 5 years). I have been checked by echo/CT every year for the last 7 years to monitor the progress of my valve regergitation and aortic aneurism. Bicuspid valve stenosis treatment involves surgery to replace the valve.